RECAP OF 2016 - ups, downs, exciting opportunities, and incredible support

Belated Happy New Year to all my lovely family, friends, fellow CFers & supports!!!

If I had to use one word to describe 2016 it would be 'roller-coaster'. I went through so many ups and downs, it was a crazy year!
Let's cast our minds all the way back to ...

January 2016 - Was the launch of BBC Body Positive Campaign, which was aiming to motivate, encourage and uplift the mood of those all over social media to be happy with their bodies whatever their shape, size, background, scars, or surgical implants.
I made a video of my life with Cystic Fibrosis which was broadcasted on the BBC website & all social media platforms. I got such a good response, and was so grateful to be a part of it! - bbc.co.uk/sport/get-inspired/bodypositive

February 2016 - Saw me having to go into hospital for my first course of IV's of the year. Although this time it was exciting as I was getting my first portacath fitted! After so many years of long lines not working, picc line trouble and silly cannulas I knew that it was time to get something a little more permanent. I made a Youtube video of my journey so go check that out - My Port - New Beginnings
Also in February I went for a secret interview with the JOLT Trust for a possible exciting adventure!

Moving onto April 2016 - Which sadly wasn't my month! Getting the news that doctors in the lab had found I was growing a horrible infection called Mycobacterium abscessus. 
Not only was it a horrible infection, but it needed vigorous and horrible treatment. This meant me going back into hospital to try and start depressing the infection in my lungs. I had an operation called a Broncoscopy, where they took six samples of mucus from the depth of my lungs to send for testing.
This then triggered a 3 week course of horrible IV antibiotics (so thankful I had my port now) which meant meaning having IVs every 8 hours 7am, 3pm & 11pm and an infusion drip at 4pm.
Through nausea, sickness, and overall exhaustion I thought I was finally finished at the beginning of May...
But No! Two days after being discharged I had an allergic drug reaction to one of the multitude of drugs I'd been having. Leaving me in fever the same evening at home & being rushed back into hospital by ambulance that morning.
Back on other IV medication, fluids, creams and antihistamine for another 3 days. The rash had completely covered my body, caused swelling, bruising and I was in so much pain!

After 2 weeks, the rash finally disappeared and I was free to go home.

12th May - I also took part in the craze over the internet called 'The Strawfie Challenge' which was to help spread awareness of Cystic Fibrosis by breathing through a straw for a minute. This is what it has shown to be like living with CF everyday. So many of my friends took part, so I thank you lots xxxx

- Strawfie Challenge post

June 2016 - came around SUPER quickly as I had been chosen to take part in a charity trip of a lifetime called JOLT (journey of a lifetime). Jolt are a charity which aim to achieve all impossibles! Every other year they take 18-21 students aged 16-20 around the world to experience new adventures, places and experiences that they quite possibly wouldn't have been able to on their own. This could have been due to a lose in the family, long term illness, physical or mental disability and everything in between. 

I was very fortunate enough to be nominated by my CF consultant and CF nurses at Brighton for the JOLT trip. After writing a letter as to why I think I should be chosen, getting shortlisted, and then an interview. I was picked to be one of the 18 people that got to go! 

July 2016 - JOLT took us to Indonesia and Northern Australia for 4 weeks of crazy fun! I faced new challenges along the way, but I feel the trip changed me for life and I am truly grateful to have had the opportunity to go. I've made friends for life  - jolttrust.org.uk 

When returning to England in the middle of August I had a brand new outlook on life. I knew my aims, and was happy in my own skin. I knew I could look after myself with all medication and have the confidence to spend a month away from home. 

I wrote a blog post about - Tips and tricks to travelling with CF

September 2016 - I knew that when returning back to England from my trip away that I was in need of a tune up. That meaning more IVs just to get my body back in tip top condition. I had just over 2 weeks of treatment but was allowed to finish the course at home. Knowing this was my last admission at Paediatric hospital in Brighton. 

End of September 2016 - Had a very exciting call from Mark Warner Holidays! After applying to work for them in 2017, i got an unexpected call asking me if I was able to finish the Summer Season at their resort in Sardinia, being their one and only Fitness Instructor. Well, since knowing I could happily look after myself for 4 weeks travelling I jumped to the idea and said yes! 

What an awesome experience. i could put all my skills, knowledge and qualifications to work and teach on a beautiful sandy beach for a job! It was hard work, teaching 5-6 classes a day but I LOVED IT! 

Fingers crossed I bag myself a place for 2017....

November 2016 - Came the month that I had to bid farewell and say my goodbyes to the paediatric CF team in Brighton. To myself and mum, they are our second family. The first consultant my mum met in Brighton when I was born, is still my doctor 18 years on. I am so lucky to have such a wonderful team in Brighton, and it was so hard to leave. - Saying Goodbye x

December 2016 - Bought exciting new start to CF life as I had finished my transition to Adult CF care, and was now under Kings College Hospital in London. Mum and I took a visit up there to see the medical ward, meet the rest of the staff, and have a check up before Christmas. I filmed it all and posted a video on my Youtube channel, so go and check it out! - Kings Visit 2016

End of December 2016 - And to top off the year, I was told that the entertainment business that I have previously done dance tours and panto with this year, had chosen Cystic Fibrosis as their chosen charity for 2017! It means so much to me that I have a fantastic support network and people/companies/businesses are going out of their way to help. You ROCK Full Beam Productions!!!! - Fullbeamproductions

So there we have it. That's 2016 wrapped up in a nutshell! What a year, through so many good and bad times, but it is always so important to look on the bright side and find the positives out of bad situations. Thank you to all those who have been with me every step of the way, liked my Facebook page (close to 500 likes!!), commented on my Youtube videos, and chatted with me on Twitter. So much love goes out to you all

What will 2017 bring? Well your just have to wait and see :) 

Nicole x 

Twitter - www.twitter.com/11nicolee

Facebook - www.facebook.com/livingandbreathingcf

Youtube - www.youtube.com/livingandbreathingcf

Instagram - instagram.com/salty_sea_

Tips & Tricks When Travelling With Cystic Fibrosis - It's still possible!

I've had some amazing opportunities over this summer, visited some incredible places & met so many lovely people.

Travelling with CF was always a worry for me. But now I've done it, I want to inspire and help others with CF have the confidence to pack your bags and head off exploring!

I've been all over Indonesia, Northern Australia and Sardinia through the months of July, August and September. Preparing before hand, writing numerous lists and getting all my medication (and big quantities of it) was the hardest part, I needed to start this well in advance.
I would advise having a chat with your local pharmacy, and telling them about the trip you're going on. I believe this is super important as they can also advise you on suitable vaccinations, and better ways in which to travel with large amounts of prescribed medication.

Here are my tips and tricks in making it easier to travel with CF;

Preparation

1. Vaccinations - make sure you have been given the correct information regarding vaccinations for the trip. With having CF, I had to look at the "less common" vaccination options as us CFers are more prone to catch infectionsand need to consider ....... issues.
2. GP/CF Consultant advice - speak with your CF team before hand about when and where you may wish to travel to. I was advised to have 2 separate courses of IV antibiotics before leaving the UK so I was in tip top condition. 
3. Malaria tablets - Super important if you are travelling to any high risk areas 
4. Safety week - Always pack an extra weeks worth of essential medication with you. Just in case of delay, flight changes, or illness. Also, spread your medication between bags if possible to avoid issues with lost luggage.
5. Paperwork - Ensure you have an up to date list of your medication and summary of your current treatment regime from your CF team. Take a copy of your repeat prescription form too.  This may assist when passing through customs!

While travelling

1. Creon - You're going to be taking a lot of it! So ask your dietitian to prescribe 25,000 creon capsules not 10,000. You will need more pots of 10,000 and will go through them quicker so 25s is the way to go. 
2. Carry your insulin pen! - You never know where you'll be at the time when you'll need to take your units. I was either in a hostel, on a plane, train or coach at 8am so I knew that my best bet was to keep it close by me each day. 
3. Keep organised - whenever you have a spare minute in the evenings with your luggage, just sort all excess cardboard boxes, plastic bags and pre mix your nebuliser if needed. 
4. Week by Week containers - following on from being organised, take containers for your tablets! This was a life saver and one of the best ideas I had! Not for creon, but for antibiotics, vitamins, intraconazole, omeprozole etc . Each Sunday evening I would sit down on my bed and pop out all my pills for the week ahead. Then I would take the small container for each day and put it in my rucksack. So wherever I was for breakfast, lunch and dinner I didn't need to go back to my room or find my big luggage bag, the medication would be sorted and with me. 
5. Washing equipment - take a small ice cream container to use as your mini washing up bowl! It's great size to fit all the parts of your nebuliser, basket etc, and isn't too big to squeeze into your luggage. 
6. Consider that some medication may need to go in the fridge - you may need to be resourceful in locating a fridge to store medication. or freezer for ice blocks in some remote locations. (I used the ice cream parlor or fishmongers next door to my hostels) Don't forget to take ice blocks and cold bag. 
7. Take a mask - This depends on where you're travelling to, but I would advise taking an air pollution mask. I wore this when travelling through smokey or highly polluted areas, the jungle and small aircraft. 
8. Sharps!- keep all needles (mine were from blood glucose monitor, insulin and prepping nebuliser) in one place. Take lots of spit sample pots and use them as a mini sharps bin.

So there we are, it's possible to travel with any condition, no matter how much medication you need. It can be done!

I was travelling for just over a month, but if I was going for longer I would probably have had to take another small rucksack to fit more medication in! 

Any questions please leave in the comments below. 

I'll be posting photos of my travels soon! 

Nicole x 

Instagram - www.instagram.com/11nicolee_

Twitter - www.twitter.com/11nicolee

Facebook - www.facebook.com/livingandbreathingcf

My Journey Of A Lifetime (jolt)

Hello!

Some months ago my CF team received a letter asking if any of their patients would be suitable for nomination to take part in an exciting expedition. I was thrilled when they told me I was the first person to spring to mind, because of my love for activity and outdoor sports.

So we followed the application process and waited to hear if I'd made it to interview stage. At around the time of my annual review in January, we received a letter to say that I had been shorted listed from hundreds to attend an interview in February.
On the day I was very nervous but excited. The JOLT team were very welcoming, and it was so interesting to meet some of the participants from the pervious expeditions. Hearing about their experiences and how they had overcome their disabilities or personal situations.

It was then a long nervous 5 week wait before I heard back from them. To make matters worse, I had found out that my treatment plan regarding my CF was to change, and potentially put my chances of taking part at risk.

However, last week I recieved a very large envelope in the post which contained a letter congratulating me that I had been chosen to take part in the 2016 Journey Of A Lifetime trip to..... Indonesia and Northern Australia!
I was totally thrilled and ecstatic to be chosen to have this opportunity to visit such incredible places in July this year.

One of my biggest challenges is going to be staying fit and well enough to get there at all. But, in the meantime I need to raise funds for this fantastic charity, which proves amazing opportunities for youngsters with a range of difficult and challenging life situations. For people like me to take part, it's only possible because we will be accompanied by medical staff who can continue to monitor and administer treatment and medication throughout the month we are away.

I need to raise a minimum of £650 to support this charity so that they can continue to offer these amazing trips and opportunities which would otherwise be impossible.

Please take a look at their website and the incredible work they do. And if you feel you can sponsor me, I would be truly grateful of any donations to my Virgin Money Giving Page which is linked below. This is just one of the many ways I plan to raise money leading up to the trip. I have lots of ideas and planning ahead.
http://uk.virginmoneygiving.com/Nicole-Allen

Thank you for your support, please keep your fingers crossed that nothing gets in the way to stop me taking part.

I'll continue to keep you up to date on my health situation and fundraising progress, but I am so happy to have something to positive and uplifting to set my sights on.

Nx

JOLT Website - jolttrust.org.uk
Twitter - twitter.com/11nicolee
Instagram - instagram.com/11nicolee_
YouTube - youtube.com/livingandbreathingcf

New Years Resolutions - Bucket List of 2016

Hello!

Better late than never to write about your new years resolutions! This year involves some big changes for me, some of which include - moving into adult CF care, going to University, turning 18, and the exciting future I have with the BBC Body Positive Campaign, and where it may take me.

I am so excited for this year and I want to make the most of it. Therefore I thought I would make a blog post for motivation and determination to see how many of my resolutions I achieve. Also, to incorporate some of my bucket list goals!

So here are some of the amazing/out of the ordinary things I would love to achieve in 2016;

1. Increase readers through my blog
2. Show more awareness for Cystic Fibrosis
3. Do a sporting event for charity
4. Complete a Gym Instructor course ✅
5. Continue to be positive and not let others bring me down
6. Take a trip to my favourite place in the UK - Cornwall
7. Write in my Q&A diary everyday
8. Make the most of each day
9. When I'm unwell don't let it get me down
10. Worry less, love more
11. Understand that everything happens for a reason
12. To not let my lung function drop below 70%
13. Compete more on my horse
14. Make more time to rest and relax
15. Be spontaneous
16. Be in a magazine column
17. Go to another festival
18. Take more photos
19. Go to Ascot - Ladies Day
20. Come out of college knowing I have worked my hardest 
21. Read more books 
22. Start a YouTube Channel ✅

There's just a few, but I may add more if I think of any others. Throughout 2016 I will keep coming back to this blog post and ticking off all that I achieve.

Thanks for reading,

Nx

Instagram  - @nicskath_
Twitter - @11nicolee
YouTube - youtube.com/livingandbreathingcf
BBC Sport Body Positive - @bodypositiveMyStory

BBC Body Positive

Hello!

I have an announcement! Some very exciting news! Over the past month I have been involved in a campaign called Body Positive, run by BBC Get Inspired. I have had the great opportunity to be part of it, and encourage health, lifestyle and wellbeing through having Cystic Fibrosis, and the variety of sport I participate in.
It’s not just sport related, but includes all aspects of physical and mental wellbeing. People may feel let down by their bodies, not just in appearance but in how well it functions. The campaign will primarily run across social media: Facebook, Instagram, Twitter and Pinterest, along with the BBC website. In addition, there will be some collaborations with other areas of the BBC, including Radio 1’s Surgery programme for a Body Positive special.
The aim of the campaign is to help, boost, and give positive advice and tips to those who suffer from self confidence, are not satisfied with their body, or also have a health or medical condition.
Wanting to build an online community of young people who feel confident and proud of who they are.
The campaign is being run over six months to show how lots of people cope with different everyday needs, but more importantly what makes them feel happy, strong and confident day to day and proud to be them.

The campaign's mission "is to inspire, empower and motivate you to feel BodyPositive"

I had to take a trip up to London on Wednesday to meet the team, film the VT, have an interview and discuss the plans for the campaign.

So, over the next six months the BBC will be posting videos of myself doing day to day treatment, days out, hospital appointments, and most importantly showing what makes me happy - riding my horse, dancing, listening to music, spending time with friends and going to the gym. Illustrating that even the small things can brighten up your day! I want to spread my positive and enthusiastic personality to those who need a friend to talk to or even make them happy for a small while. To also show awareness for Cystic Fibrosis and demonstrate what it really is, and how it effects me daily. Moreover, my aspirations and plans for the future.

If you would like to keep updated with all the videos, radio events and photos, please follow the links below to the Get Inspired - Body Positive web pages, and also my social media links for other CF related information.

I am thoroughly looking forward to the next few months, and what it may bring for the future. I am honoured to be part of this campaign, and I hope this will help many people.

Get Inspired - Body Positive

Instagram - @bodypositivebbc
Twitter - @bbcbodypositive
Facebook - @bodypositivebbc
BBC Website - bbc.co.uk/sport/get-inspired/bodypositive
BBC Body Positive Post - MEET NICOLE

My Links

Instagram - nisckath_
Twitter - 11nicolee
BBC Body Positive Post - MEET NICOLE

Cystic Fibrosis Trust 

Home Page - cysticfibrosis.org.uk
What is CF? -  cysticfibrosis.org.uk/about-cf
Article on NICOLE BODY POSITIVE - Nicole talks about body positive
Donate - cysticfibrosis.org.uk/ways-to-donate

Annual Review 2015 - Part 1

Hello!

It's the time when we review the last year. Look at the good months and not so good months, changes and overall health through 2015.

An annual review is designed to look over all results of lung functions, blood tests, height and weight and admissions into hospital, and see how the last year has differed from others. We make plans for the future, possibly try new medication and make short and long term goals.

Just before Christmas I took a trip into hospital to do all the testing ready for my review in January. I saw my CF nurse and physiotherapist. I had to do many tests in the lung function box, such as blow out continuously before needing a breath, relaxed breathing and blow through a pressure valve to test resistance. When looking at the results at my review, we can tell how clear and open the bronchi are, and that the airways are not tightening or collapsing when coughing. Also, any troughs in the diagram can indicate wheeziness or possible infection.

After this I had a blood test, which was to check blood glucose levels, liver function and vitamin absorption.

Next I had an X-Ray. I sadly don't have the photo (hopefully getting it at annual review) but it looked clear, with a few grey areas on the top right of my lung. This means the airways in that specific area may have some inflammation. I have always had trouble at the top of my lungs, which is why its important to work my lungs hard and become out of breath often to use the full capacity.

I then saw my physio, we went over my current physio regime and what medication I am on. I then did the bleep test, which measures my all round fitness and stamina. I like to mix up my physio routine regularly because I get bored easily of the same equipment and exercises. When we discuss the results in January we will also talk about the various sport I part take in and how that works well with my physio, and overall health.

I will be writing a continuing blog post about the review later on in January with results. I am also meeting the Kings Team from London's CF unit to help with the transition into adult care.

Overall I think it went well, fingers crossed for positive review and a good start to the New Year.

Thanks for reading,

Nx

Twitter - twitter.com/11nicolee
Instagram - instagram.com/nicskath_

Cystic Fibrosis Trust Website

Growing Up With CF - Becoming An Adult

Hello!

After seeing a recent video that the CF Trust uploaded onto their Youtube channel, I thought I would use some of their questions to make a new blog post. To share my own opinions, views and experiences of what's it's like being a teenager with CF.

How does CF impact on my life?

It affects me everyday. Constant need of medication and physio to keep me well.
Being able to enjoy time with friends, going to the cinema, having nights out or going out for lunch. I have never let it hold me back.
The main impact it has had on my life is time management! Trying to fit everything I want to do, and everything I need to has been hard! I never want to miss out on all the fun, but to do that I have had to keep on top of all treatment otherwise I would become ill.
From a very young age I have participated in a range of sports. I have continued to enjoy sport now nearly 18 and I believe it has been one of the main reasons I have kept so well. Filling most of my life with sport has lead me to not miss out on as much as I could have done. Still participating in competitions, either in dance or horse riding.

How do I incorporate my treatment into day-to-day life?
I have to plan my time accordingly, especially when needing to take extra medication in the morning. While at college, my timetable varies, and therefore each day is different. Since starting a part time job in 2014, I had to make sure I made time before and after work to complete all treatment, and have enough time before bed. I have to be organised and think ahead of each day. It can be hard when it comes to half terms and school holidays when a routine can drift and it becomes harder to keep track of day-to-day medication.

When I was younger 
At a young age I remember forgetting I had CF and always accepted I needed to take medication and do regular physio. I remember evenings on the wedge with mum and her always making it a fun activity even when I didn't want to do it! One other memory I have as a young child is adults or older friends asking me "what do you suffer from?" I used to answer with "It's called CF but I don't know what it means" !
As I have become older I have learnt to deal with being an inpatient and understanding what treatment I need. I have still been able to take part in school sports days, discos, and trips away, but only if I stay on top of my treatment.









What are my plans for future?
2016 is going to be a scary year! After just applying to University for next year, I'm slowly having to take control of all my medication and treatment. I'm planning on using my long summer ahead to possibly travel, achieve my NPLQ beach lifeguard qualification and just enjoy the time off!  For the long term future I want to possibly take a gap year and work abroad! This will depend on my health and how well I am throughout the next 3 years go an Uni!




Does CF effect where I want to go?
I have applied to University not too far from home as I know I need to be in close proximity of my family and CF team. It is important to make sure it's not hard to get home if I become unwell or need to be admitted to hospital. Also, with regular hospital updates, and 'home' visits to consider.

How am I feeling about transitioning to adult care?
It worries me. I don't like change, and it will be a big step for the future. I have had the same nurses and doctors since birth, so it will be hard to say goodbye after making strong friendships.

Has cross infection made it tricky?
Many years ago CF research hadn't shown that cross infection was a problem between CF patients. It used to be possible to meet up with other people with CF and discuss our problems and fears with each other. However, it was then shown that infections can be passed when in close proximity with another CF patient. Fotunately, since the internet has grown, we have found different ways to communicate.

Has the use of social media helped me?
YES! The power of social media has helped so many people around the world to share their lives, experiences and worries with each other. Making friends, having questions answered, and a platform to talk to one another. The majority of my Twitter feed are other people with a CF background. Either mums, brothers, uncles, friends or even themselves who have CF. I believe there's a great community where we chat and support each other every day. Also through useful websites, where lots of interesting information can be shared, and new research from gene therapy can be documented.


Nx

Twitter - twitter.com/11nicolee
Instagram - instagram.com/nicskath_

www.cysticfibrosis.org.uk/
https://www.youtube.com/user/CFTrust

THANK YOU! Fundraising for Cystic Fibrosis

Hello!

I want to dedicate this blog post to all my family and wonderful friends who have helped and participated towards raising money for Cystic Fibrosis for the last 13+ years. This is my way of saying a massive THANK YOU!

Our first charity event was back in 2003 when we had our first coffee morning. It was situated in a small town hall and we raised around £500.
Over the years more and more ideas have sprung to our minds, and in turn close friends and family have wanted to get involved.
Very quickly here are some of the various events we have held:

• Coffee mornings in 2003 - 2008 which raised around £500 at each event
• 2006 took my mum and two friends Roma and Rebecca to the Grand Canyon for 8 days where they trekked over sheer rock descents, river crossings and waterfall climbs. Raising £9,000 between the 3 of them
• 70's and 80's night in 2007 and 2008 which in total raised just under £2,500 
• First Tongue and Groove band night was held in May 2009
• Annual Golf Day organised by our friends the Cannings, Priors and Peerless' started in 2009 raising approximately £800 at each event
• In 2011 the first Charity mountain biking event which involved over 59 riders, raising £1,106!
• My dad and friend Burgs cycled from Lands End to Seaford raising a whopping £3,000 in 2011
• In the same year my mum swam the 1 mile British Gas London Swim in the Docklands. Which she repeated in 2012 with friend Susie.
• Tongue and Groove band nights have continued each year since 2009 in total raising around £8,000 so far!
• 2012 bought another mountain biking event which raised over £2,000
• My secondary school raised over £1,200 in a charity Fun Run in 2012
• My mum and friends Sam and Cheryl cycled the London Night ride in 2013 and mum previously cycled it in 2011 and 2012
• My boyfriend Harry and friend Andy ran the Seaford half marathon in 2014 raising just over £400
•  My incredible mummy cycled the Prudential Ride 100 miles around London in 2014 
• At the end of 2014 my uncle Trevor dyed his hair blue and let it grow for 5 months! Then dyed his beard too and let it grow for an additional 2 months! Raising just over £2,000
•  In 2015 our lovely friend Kate ran the South Downs marathon and raised £500 

Here are only a few of the hundreds of photos that show the incredible support, and a short description below each picture.

 One of our various coffee mornings 

 70's and 80's night!

The view of The Grand Canyon

Mum, Roma and Rebecca in the local newspaper

 Lands End to Home

Cycled over 335 miles 

In the Newspaper!

 Secondary School Fun Run along the Seafront in 2012

 Running in heavy rain!

 Mum and friend Susie in London doing the 1 Mile Docklands swim in 2012

 Mum, and friends Sam and Cheryl at the finish of the Night Ride

 Mountain biking event has been successful for 3 years! So many people took part!

Tongue and Groove Band Night! This has been our biggest fundraiser, running once or twice a year since 2009 

Raising over £1,400 each night

 So many family and friends came and enjoyed a great evening of live 80's, 90's and current music sung by an incredible band!

   Harry running the half marathon on one of the hottest days of the year!

Andy with him too!

 They finished at a time of 1 hour 40 minutes 

 Mummy at the Prudential Ride 100

 Super super proud of her! Went and surprised her at the finish line 

 Uncle Trev and his bright blue hair and beard 

 Saturday night in the local pub where he finally got it all shaved off! 

Lovely Kate finishing the marathon in 6 hours 6 minutes

Now it's your turn!
How can you help the Cystic Fibrosis Trust?

Your support is vital for the CF Trust to continue to work in research, campaigning, support and care for those with Cystic Fibrosis.

There are loads of ways you can help, and together we will make a difference to thousands of lives.

Whether you want to donate, join an event, organise your own event, take part in a campaign or get your company involved, there's a part for you to play.

It can be something small like a cake sale or something big like a marathon! There are many ways in raising small or large amounts of money.

Please visit the CF Trust website to see what you can get involved in -  http://www.cysticfibrosis.org.uk/get-involved

Maybe there is something going on in your local area?

http://www.cysticfibrosis.org.uk/in-your-area

If you would just like to make a donation please use the link below - 

Donations 

THANK YOU! 


Nx 

Twitter - www.twitter.com/11nicolee
Instgram - instagram.com/nicskath_